tag:blogger.com,1999:blog-4077075126044741218.post6023369965422793206..comments2023-11-02T09:29:02.607-04:00Comments on Lost In Holland: A Mid-Night CrisisUnknownnoreply@blogger.comBlogger15125tag:blogger.com,1999:blog-4077075126044741218.post-68453842105697023142009-07-05T10:14:32.795-04:002009-07-05T10:14:32.795-04:00Wow, I just read this and can very much relate. A...Wow, I just read this and can very much relate. Although my daughter doesn't have seizures, I can relate to everything else.. it is something I ask myself a lot: am I being the best mother I can be to her, or how can I mother her, I wish she could show me the way..Hollyhttps://www.blogger.com/profile/10590648520881407651noreply@blogger.comtag:blogger.com,1999:blog-4077075126044741218.post-15616523539091509062009-07-01T15:40:08.809-04:002009-07-01T15:40:08.809-04:00I am stunned. What a nightmare. Literally. I can&#...I am stunned. What a nightmare. Literally. I can't even imagine.Jeanniehttps://www.blogger.com/profile/11820943537391165477noreply@blogger.comtag:blogger.com,1999:blog-4077075126044741218.post-14324951529881804232009-06-28T15:51:25.229-04:002009-06-28T15:51:25.229-04:00This made me cry and moved me in a way that few th...This made me cry and moved me in a way that few things do. I have been there with you sitting on the other side of the room, feeling helpless (and a little rejected) and loving her with all my heart. Thank you for this. I needed it today.<br />Love.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4077075126044741218.post-14113768662901287402009-06-25T16:19:32.714-04:002009-06-25T16:19:32.714-04:00By the way, I linked to your post at my homeschool...By the way, I linked to your post at my homeschooling/parenting blog. I hope that's O.K.Stephaniehttps://www.blogger.com/profile/06932060902413958983noreply@blogger.comtag:blogger.com,1999:blog-4077075126044741218.post-77913770634253820872009-06-25T16:06:29.936-04:002009-06-25T16:06:29.936-04:00Your writing is heart-wrenching and beautiful -- I...Your writing is heart-wrenching and beautiful -- I love your posts. I am sorry for everything you went through that night. It must have been terrifying.Stephaniehttps://www.blogger.com/profile/06932060902413958983noreply@blogger.comtag:blogger.com,1999:blog-4077075126044741218.post-68260202464803222982009-06-25T14:32:32.006-04:002009-06-25T14:32:32.006-04:00By the way, I recommended your Welcome to My Plane...By the way, I recommended your Welcome to My Planet blog on my blog. You're an awesome writer, and your postings are poignant.Beth L. Gainerhttps://www.blogger.com/profile/08780737397716824019noreply@blogger.comtag:blogger.com,1999:blog-4077075126044741218.post-17230913264554432682009-06-24T22:18:36.632-04:002009-06-24T22:18:36.632-04:00This is such a beautiful and heartbreaking post.
...This is such a beautiful and heartbreaking post. <br /><br />I'm sorry you all have to go through this.Michelle O'Neilhttps://www.blogger.com/profile/03221354521123541601noreply@blogger.comtag:blogger.com,1999:blog-4077075126044741218.post-18656525697759244842009-06-24T15:30:37.598-04:002009-06-24T15:30:37.598-04:00Wow. This was such a powerful post. Thank you fo...Wow. This was such a powerful post. Thank you for sharing your vulnerability. My heart goes out to you and your family during times like that.Jeve (aka John and Steve)https://www.blogger.com/profile/06549658852303570290noreply@blogger.comtag:blogger.com,1999:blog-4077075126044741218.post-4253700187886112202009-06-23T23:29:21.960-04:002009-06-23T23:29:21.960-04:00You KNOW her. You knew what she needed, even thoug...You KNOW her. You knew what she needed, even though it was hard and maybe counter-intuitive. You know her, and your love for her allows you to give her what she needs.michellehttps://www.blogger.com/profile/09861251743062824891noreply@blogger.comtag:blogger.com,1999:blog-4077075126044741218.post-56587214449211531432009-06-23T18:36:56.006-04:002009-06-23T18:36:56.006-04:00Your amazing and brave to "let go"..my h...Your amazing and brave to "let go"..my heart is with you..tiffrutherfhttps://www.blogger.com/profile/09340837410773531496noreply@blogger.comtag:blogger.com,1999:blog-4077075126044741218.post-50257156257579416892009-06-23T16:34:01.243-04:002009-06-23T16:34:01.243-04:00@Queenbuv3 - yes, we sure do have a diastat kit an...@Queenbuv3 - yes, we sure do have a diastat kit and have only had to use it a few times - if the seizure goes over 4 minutes. we werent sure if that psychotic reaction she was having was a seizure or not... we thought about using the valium, but when we let go of her, she calmed down. Her meds work pretty well... she only has one seizure every 3-4 months or so. The longest she's gone seizure-free has been about 8 months. so, its pretty good :)Alicia Dhttps://www.blogger.com/profile/06244714478310893367noreply@blogger.comtag:blogger.com,1999:blog-4077075126044741218.post-1959002686007670092009-06-23T14:42:50.829-04:002009-06-23T14:42:50.829-04:00I'm so sorry about how awful that night must&#...I'm so sorry about how awful that night must've been. You and your husband are strong, courageous people. <br /><br />The hardest thing to do, I'm sure, was to let go, but you both had the courage to do so.Beth L. Gainerhttps://www.blogger.com/profile/08780737397716824019noreply@blogger.comtag:blogger.com,1999:blog-4077075126044741218.post-91258888245054043222009-06-23T13:49:10.626-04:002009-06-23T13:49:10.626-04:00Do you have Diastat for seizures lasting longer th...Do you have Diastat for seizures lasting longer than 5 minutes? We almost had to use it when my son had a breakthrough seizure on July 4th last year.<br /><br />Is her siezure medication not controlling the seizures? <br /><br />I know how terrifying seeing your child have a siezure can be. All you can do is watch and keep them safe. My son vomits and turns blue and it's like watching him die. <br /><br />Hope she is feeling better now.Queenbuv3https://www.blogger.com/profile/10767805292831696201noreply@blogger.comtag:blogger.com,1999:blog-4077075126044741218.post-71129145046979478642009-06-23T13:25:44.640-04:002009-06-23T13:25:44.640-04:00Ditto what Smiling Mama said. Thanks for sharing ...Ditto what Smiling Mama said. Thanks for sharing this with us...brutal. I wonder if Stephanie Keil can offer any insight into the "terrors". My heart's with you.Clairehttps://www.blogger.com/profile/13070297384173508509noreply@blogger.comtag:blogger.com,1999:blog-4077075126044741218.post-35218702717476238012009-06-23T13:08:48.945-04:002009-06-23T13:08:48.945-04:00I can't imagine how hard that must be to go ag...I can't imagine how hard that must be to go against every motherly instinct and to let go. Yet, it also seems that you are giving her what she seems to need most and are therefore being the best mother to her.Aimee @ Smiling Mamahttps://www.blogger.com/profile/18103618447184051230noreply@blogger.com