Monday, June 17, 2013

Weekend Wrap-Up, Etc



The first official day of summer break has begun! 
The girls finished their school year on Friday. The past 9 1/2 months have FLOWN by! How did this happen?  I still don't think I've fully processed the fact that they are done another school year.  I now officially have a Kindergartener, Second Grader and Fourth Grader. CB has only three academic years left until she is done with school and on to the next phase of life... whatever that may be. *insert anxiety here* 

It's going so fast.  When will I stop saying that?

Bus Stop ~  First Day of School, 2012


Bus Stop ~ Last Day of School, 2013


Pink ~ September 2012


Pink ~ June 2013 


Tink ~ September 2012 


Tink ~ June 2013


CB ~ September 2013 


CB ~ June 2013


 Rella ~ September 2012


Rella ~ June 2013


*******

Last week was Dr. Fabulous's birthday followed by Father's Day.   
We celebrated his special day with cake and gifts from the girls which included a "sword" made out of tin foil from Tink, handprints (meant to be given on Father's Day) from Rella, and $1.71 wrapped in a napkin from Pink. 

You gotta love the kid gifts. 
Mine actually were not too much better. 


We leave on vacation in 11 days, my in-laws are moving in with us (temporarily) tomorrow, our niece has been living with us for the past two weeks making five girls in the house, I've started working with an editor and I have zero free time to write, and there is a ton going on so I don't feel like summer has really started yet. 


Hopefully we'll get ourselves to the pool and start 'chillaxing' a bit. As for now, I'm dying under an avalanche of laundry and under the gun on a writing deadline so I'm gonna wrap this up while the kids are playing outside (by threat of cleaning the basement if they come back in the house). 
Later!

Wednesday, June 12, 2013

In The Field



The end of the year means Track and Field days for all the girls.  

Sack races, egg and spoon races, sprints, relays and bouncy houses.  I remember doing these Field Days a kid.  I remember how it was the best day of the entire school year!

Rella's day was hot, so there was a lot of water fun (and big water fight at the end with teachers and students!)



Tink had a scorcher of a day, humid and hot, but it didn't squelch the fun.

Red Baseball hat, third from the front - tuggin' her heart out with her tiny muscles!


Pink's weather was absolute perfection. 



CB's school actually does a full week of school-wide activities called "Olympic Week" complete with team t-shirts, opening and closing ceremonies, swimming, bowling, and volleyball.


 The bowling ramp definitely helps these kids out!

 Volleyball used a balloon instead of a ball to make it easier to track. 

The first time I've ever seen CB swim. She doggy paddled with this life vest thing on in water over her head (PS, no way would she ever be able to stay afloat without it!) It was so cute. 

I love that despite their unique differences, I was able to watch all four of my girls participate in their Field Days.  They had a ball, and I loved watching them.
My face actually hurt from smiling.

Monday, June 10, 2013

Weekend Wrap Up - When Two Worlds Collide


Friday was a day where two worlds collided.  
Ok, that is a rather dramatic description of what really occurred.  Friday was the first day of a weekend-long writers conference in Philadelphia that I waited all year to attend.  A conference I have been excited about for months. A conference ripe with writers, editors, agents, experts, beginners and all those passionate about the art and craft of writing.  

Friday afternoon, right smack in the middle of the day, was also Rella's pre-school graduation. 
Of all the days.

Mother and writer, writer and mother.  The two have been at odds since the very beginning, warring within my heart and fighting over the tiny morsels of my time.

Guess which one won?


My husband and a few friends tried to talk me into forgoing the graduation and attending Friday's workshops instead, knowing how much the conference meant to me and what a difficult choice it created.   

"It's only preschool," Dr Fabulous said. It wasn't lack of caring that made him encourage me to boycott the graduation but rather his version of letting me know it would be okay. I could miss it and she wouldn't be scarred - I wouldn't be a bad mom.  He was giving me the permission I often can't grant myself - to indulge the other parts of me that take a back seat to my all-encompassing role as a stay-at-home mother. 


I toyed with the idea of choosing the conference, really considered it. In the end I asked myself this - One year, five years... five minutes down the road..which was I going to regret not attending?  
When the answer came to me in a nanosecond with indisputable clarity, I knew without question where I wanted to be - not NEEDED to be, WANTED to be.  
No obligation, no guilt. No half-heartedness.
My whole heart.

I wanted to see Rella graduate.  I would have regretted it and of course I knew this before I even consciously asked myself the question. A conference can wait, a conference can come again.  
Not everything in life does. 


I can't explain how much I love writing, how passionate I am about forging a writing career and my goals of publishing. Because of this obsession, I often feel frustrated with the little time I can devote to my craft, my projects, my dreams.  I squeeze writing in between the cracks of my day and devalue it constantly. It comes after the laundry, the cooking, the baths and the bedtimes. It comes last, it comes when I can fit it in and there is never enough time for me to make much progress.  In that respect, I have always seen writing and motherhood as mutually exclusive. The two cannot co-exist peacefully. The two cannot share the 24 hours in the day, the psychic energy in my mind, or the space in my heart. That philosophy has caused me much frustration and disappointment.  

Yet, this weekend I not only shared my two worlds but I came to realize they don't need to fight within me so much. Being a Mom is not a thing I do, a series of actions and behaviors that ensued after children came forth from my body.  Being a Mom is an inextricable part of who I am.  All the pieces of who I am makes me a better writer and person. Without motherhood, I would not be able to tell the stories I tell, see the world the way I do, or work so hard on my dreams.  I need motherhood to write and writing, ironically, makes me a better mother.  

Despite my awesome Canon, I just couldn't get a good photo of her on stage from my seat. 
 Ugh, the blurry heads in my way!!

My family comes first, before everything. Before my own life, literally and figuratively. Yet, that doesn't mean that I cannot be other things and dream complimentary, not conflicting, dreams.  Women have done it before, they are doing it now, they will always do it.  

What makes me able to write what I write and how I write is a direct result of my experience as a mother - whether I'm writing about motherhood or not.  My perspective, my stressors, my joys, my growth, my love helps fuel everything that comes from me. Take these guys out of the equation?  There are no muses, no journeys, no mountains. Maybe I need them and the tug of war that they create. Without that struggle, more than just my writing would fall flat.


I can't be two places at once, but I can make room for two things on one day.  Or at least, this time I could. I missed some of the conference, but I did get to do both. It is the art of juggling, choosing, yearning - that tug of war, that balance, that questioning, that striving... maybe that all makes the passion more passionate, the writing richer, the family happier, the soul more multi-faceted. 

Motherhood means balancing lots of things, but that in and of itself means you have a rich life.  I'd rather have too much to juggle than nothing at all, right?  I can only do the best I can and recognize that everyone else is doing the same.  As long as I'm never unclear about what is at the top of the totem pole, I am good.  


And by the way, I had an amazing time, learned a great deal and met some incredible people.  
I also learned my memoir sucks.  
But I also learned how to fix it... hopefully.

If you are near Philadelphia, check out the Philadelphia Writer's Conference next June. 
And, if you do - tell me and I will find you and buy you a drink!!

Thursday, June 6, 2013

tHERsDay

Scenes from a morning.





I know I haven't written since last week.  Our family life has been dialed up a notch and I have very little free time of late - no time to write, blog, sleep, clean, or keep up with much of anything outside of the kids.  
Right now, I'm banging away on the keyboard at almost 11:00 pm so I can write this quickie blog and get to bed. Tomorrow is Rella's Pre-K graduation then I scoot off to a weekend Writer's Conference in Philadelphia. I haven't even thought about what to wear and don't even remember where it is.  
I hope I put gas in my car.
I thought I would take this conference way more seriously, but I don't even have business cards.
Or a pitch ready.
Or an outfit. Or my legs shaved.  
Those last two probably aren't as important but, ya know... 

There are 6 days left of school for the three little ones, 8 days left for CB.
I can't wait until things slow down a bit. 

Saturday, June 1, 2013

18

Yesterday was CB's 18th birthday.  


She slept in, still tired from the seizure that knocked her right out of bed the night before. I took her in to school late, instead of letting her play hooky.  They were going to do cupcakes for her. It was the closest thing to celebrating with friends she would get, and I didn't want to take that away. 


Seizures start...





Seizures going berserk. In a few months she'd be diagnosed with Autism & Cognitive Impairments. 



Four years old and almost unreachable. 


My favorite photo of her.  I used to think to myself "This is the picture where I can see her without Autism. I can see her like she's just another 5 year old kid."


My favorite school photo, at age 8



I posted a "happy birthday picture" on facebook in the morning and was overwhelmed by the kind thoughts and birthday wishes she received.  It really made me happy. Tearfully happy. 


Eighteen is a big year.  So big, I don't really know what to say.

This might have been a year of graduating high school and preparing for college.
This might have been a year of senior trips, a summer job, maybe her first used car.
But it's not.  Instead it is what it is.  It's lots of things - neither good nor bad, better nor worse.  Just different.   
Really, really different than what I thought and planned.

Her big gift is going to be the construction of a Sensory Room in our home.  It will be a space just for her where she can be herself with textures on the walls, rubberized floors, big cushy mats, therapy swing, playhouse, and hopefully some of those cool fiber optic curtains and big bubble pillar. It's a massive project and it will take a few months to create the room and several years to get some of these big ticket items in there, but it will be so kick ass when it's done.

 So in the meantime we celebrated at home with an ice cream cake, homemade cards from the girls and CB's favorite thing - the singing of the Happy Birthday song.
I had a video of it, but it won't let me upload into this post so the pictures will have to do. It was cute though.

So many things in life are unexpected, and the most unexpected thing of all is how much I've been blessed. 







Happy Birthday CB.  
We love you!




Thursday, May 30, 2013

tHERsDay


On the eve of CB's 18th Birthday there are a lot of things I could write.  However, I'm feeling a bit non-poignant tonight.  CB wasn't her best this evening.  Certainly there have been worse days. She didn't break an expensive, flat screen TV or paint the entire house with the contents of her diaper.  It was just her moodiness... her inability to let me know (or even know herself) what she wanted. That, coupled with the fact that Thursdays are a "shuttling back and forth night" with after-school activities, just made annoying things much more annoying.

I kept thinking "Man, I'm so glad today isn't her birthday," mainly because I was not having peaceful, awesome thoughts about Autism today.

*****

I wrote the above earlier tonight.  I'm returning to the computer after rushing into CB's room following a big "Thud" where I found her on the floor in the throes of a grand mal seizure that had knocked her out of bed.

I thought about how much I hate seizures and then I thought again: "Man, I'm so glad today's not her birthday."

But it's the eve of her birthday and after 18 years so little has changed.  I'm still watching seizures.  I'm still sitting vigil. I still have yuck days in between the ones where I have everything all figured out. Yet, there are more days I have things figured out which has been the biggest change of all.


I had different plans for tonight's series of "The CB Diaries." A story about a gingerbread cake.  I just don't have it in me right now, so I'll tell it another day.  It's 11:00 and I'm going to go to bed to pretend that I'll actually fall asleep.

Since it's tHERsDay I will just randomly shove in some old photos I found of CB with baby Tink. This was June of 2006 and CB was a big sister for the second time.



These pictures have nothing to do with my post, but they make me happy.


Wednesday, May 29, 2013

The CB Diaries - Part II




A few years ago I attended my niece's baptism.  It was a double baptism, actually. My sister-in-law and her sister Amanda had their first babies within weeks of each other and decided to baptize them together. 

After the ceremony we all congregated outside before heading to a large, joint celebration at a restaurant. Amanda looked over at me, coiffed and beautiful after posing for a milllion pictures in the church. She rolled her eyes and laughed while balancing her son over one shoulder and a diaper bag over the other and said with slight exhaustion "This is just like a wedding, except you're trying to do it all with a kid on your hip." 

I blurted out a half-stiffled laugh.  "Oh, you mean... people can DO that? That's a real thing that happens?" She furrowed her brows a bit at me.  "I mean... sorry," I giggled, clearly the only one laughing at my private joke. "I never had the luxury of getting married without a kid... either time."

Awkward pause occurred right about here.





I was married twice - the first time with a three month old and the second with a significantly cognitively limited, 8 year old on the Autistic Spectrum.  Well, technically the first time I was married it was in a court house seven months pregnant in a five minute ceremony conducted by a Justice of the Peace.  So, I guess I was technically freed up for that one.  The big ceremony with a wedding dress, proper vows, rings, first dance, cake and reception occurred three months after CB was born which is what I "count" as my wedding because the whole City Hall quickie wedding thing was sorta depressing for me. 

Anyway, I've never planned, shopped, primped and preened for a wedding while not simultaneously being on mommy-duty. There was always the stress of taking care of a child on top of the stress of almost single-handledly planning a wedding (I have seen the latter alone render near nervous break-downs in some young women). At my first wedding, CB being so little so it was easy to find lots of people to hold her and help me. It was much more stressful at my second wedding. CB was older and more wild and unpredictable. There were medications to give, diapers to change, and a non-verbal, easily frustrated child with fluctuating moods with whom to contend. I actually considered not having CB attend and participate in my wedding at all. It would have been easy - VERY easy to let her go spend the weekend with her biological dad.  Certainly everyone would understand.  It was almost too much. I wasn't sure I could manage it all.  




Yet, I just couldn't picture my happiest day without her by my side. We had been through so much together. We were becoming a new family. She needed to be there, so she was.

She was with me in the hotel room, along with my bridal party, as I readied myself in the hotel. Then she rode over in the car with me. I remember I was in the passanger seat, she in the back.  I turned around as we sat out front waiting to exit the car and line up outside the church door right before I would go in and get married.  I turned to her and pleaded "Please, just make it down the aisle.  Just walk down the aisle.  That's all I want you to do.  That's all.  Just please, please, please do that for Mommy."  She hummed and stimmed and stared into a void.  

I guess on some level she knew what I was begging for, and she gave me the only gift I asked of her that day.  She walked down that aisle, escorted by my sister. That is about all CB was capable of that day and I know in my heart she did it for me. 



Though I was still hiding outside and couldn't see this big moment, I heard there wasn't a dry eye in the house.

Sometimes I think that Baby Girl doesn't understand a word I say. But then, I remember our language goes beyond words.  It always has, by necessity.  It always will.


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